Wednesday, December 17, 2014

Looking ahead to 2015!

Thank you to all who have supported Treasures of God Children's Home in the setting up phase, and to those who have started to give monthly to provide quality care for our girls. Thank you to those of you who have given special gifts to help out through the year. Thank you to those who have prayed for the license, the girls, and my sanity! You have all been a big part of the story of Treasures of God Children's Home! 

Since my last blog, we are happy to announce that we have received two more girls! This brings us up to a total of 6 treasures in our home. We are so excited to be growing! 
Guadelupe, or Lupita as we call her, is 5 years old. She is smart, and loves to help out. Especially with the other girls. She has been removed from her parent's care, and has been to many other Children's Homes. We hope she has now found her forever family!
With the addition of these girls, we have seen a big increase in our operating costs. Five out of our six girls use diapers, two of them use adult size diapers. These are very expensive. We have two nannies on at all times to give individual and specialized care to our girls. We have a physical therapist, occupational therapist, speech therapist, psychologist, and social worker that all come to the Home to work with our girls. 

Due to the many health challenges, we have needed many special medical consults (neurologist, ophthalmologist, pediatrician, cardiologist, nephrologist, dentist, etc.). With the exception of our pediatrician, all the specialists are in Guatemala City, a four hour drive away, and often requires an overnight stay as travelling at night is dangerous. This means extra staff, gas money, food and lodging. Medicine, exams, and treatments, etc. are all quickly adding up.

Since September, we have not received enough to cover our monthly costs, and our reserve has quickly dwindled. Our current budget is $4500. a month, and we are sponsored for 56% of that. 
Shirley is three years old, and suffered a severe brain injury. She has many obstacles to over come, both physically and emotionally. Through it all, she is a (mostly) happy little girl who loves to great you with a big "Hi!" whenever you meet her. 

Please prayerfully consider becoming a regular monthly partner with our girls. If you know of someone who would be interested in sponsoring the girls home, please pass along our information. 

All donations made from Canada and the U.S. will receive a tax deductible receipt from their respective country. Any donations made by December 31st will be applicable to your taxes next year.

Thank you so much. To donate, please click on the donate buttons at the top of this blog. You will be automatically directed to the website.

God bless.

Naomi, Jackely, Yasmin, Guadelupe, Luz, Shirley, and Marcela!

Thursday, November 20, 2014

Meet Luz!

Last week I received a phone call to receive a little girl abandoned in a hospital. They had to guess at a birthdate, and gave her a new name, as the mother asked someone to watch her while she went for a snack, and didn't come back.

The social worker that spoke with me said they weren't sure how they would get her out to us as their was no money for the ambulance to bring her. I quickly offered to pick her up. I had never been to this part of Guatemala, and the drive was beautiful. I was told the trip would take anywhere from 6-8 hours one way, and I wasn't sure I could go there and back all in one day! Thankfully it only took a little under 5 hours each way and we were home that night.
 We left at 4:30 in the morning, but after only 20 minutes we had to stop because part of the road had washed out and there were too many rocks. We waited for over an hour for the sun to come up, then gave all those guys a chance to move the biggest of the rocks.
 There was a very big landslide 2 years ago, and this part of the road keeps washing out, and they keep putting more dirt on top of it. 
How we felt about crossing it. Kimy had told me a story of crossing it before, and the bus got stuck, and started to slip and the driver was crying because he thought his bus would slide off the road into the abyss. Nice timing on the story!!! I was actually pretty scared, but we made it just fine. :) And Kimy said some of the men were saying, "Oooh look, a woman driving!" Oh ya!
 She slept most of the way home.
 Judging by the rotten stumps of teeth she has, teeth brushing hasn't happened much in her life.
We are happy to have Luz as part of our family! As she was abandoned over 2 months ago, and her mom has not showed up, I believe she will be a forever part of our family!! She is blind (she squints when a bright light is right in her eyes), has epilepsy, is mentally delayed, doesn't speak, and possibly is deaf, so we all have some work to do to figure out an effective communication system.

Please pray for Luz as she begins to adapt to our home and schedule, and feel safe with us. She has had a lot of transition recently, and that is difficult for anyone. 
 Welcome to the family, little Luz!

Friday, November 7, 2014

Quick update.

Well, we only have three girls, but they seem to keep us busy!

The new staff are stepping into their roles here at the home, and I have seen some very positive things. Please continue to pray for all of us in this time of transition. Pray for the new nannies, as I am asking them to do things they are not used to doing, or are not familiar with. Pray for wisdom for me in deciding who are the best nannies to work with the girls.

Jackelyn and Yasmin have seen a neurologist and have started a medicine that has calmed them down. Jackie is much more calm and manageable, but still has a propensity to hit and pinch and tends to be unpredictable. Please be praying for that situation. Right now Marcy is our only other little one, but we have three more little ones on the way (I just don't know when, because of their different circumstances), and two of them don't walk, and therefore can't defend themselves. We can't ever have all the girls together, as Jackie tends to hit and kick and pinch those who are near her. Not always, but her unpredictability makes it very difficult to trust her around other children. Please pray for our court date on Monday when a decision will be made as to whether Jackie stays with us or goes.
 Jackelyn
Yasmin
Marcy and I took a trip to Guatemala City last week to see some of her specialists. I'll admit it, I loved having one on one time with her for those three days. She is such a joy to be around, and it was fun to be just her and I. :)

Her cardiologist told me a different diagnosis than last time. But the good news is she is stable, and for now, will only need to be seen once a year. Praise God!!! We spoke with the nutritionist and talked about her poor weight gain. Hopefully some of her ideas will cause a quicker increase in her weight gain. Please be praying for that. We missed her nephrology appointment due to a 7 hour and 10 minute wait at the cardiologist office! So we will have to make up that appointment another day. Marcy had a small seizure with me about a month ago. Praise God, it has only been the one, but I wanted her to see a neurologist anyway. He is happy with her, and her EEG turned out normal. So we just keep an eye on her for any more.

Marcy has once again been on the receiving end of a miracle. While visiting with her cardiologist, he expressed displeasure at seeing her feeding tube in still. I told him that because of her history of malnutrition, and her current poor weight gain, I didn't want to take it out and basically see if she would just start eating on her own. He said to go for it for a few days. If she doesn't eat, we put the tube back in.

The day after we got home (last Thursday), I went to pick her up in the morning when she woke up, and she had already pulled her tube out. I will admit, I was sad as I wanted the privilege of getting rid of that nasty thing. But I guess she was telling me she had had enough of it as well!

We had four days before I had to leave her to go back to the City with the older girls. I decided if she wasn't eating well by Sunday night, I would put it back in. The first three days didn't go well. She took barely enough to survive. But Sunday morning she woke up hungry! She ate so much better that day, and all this week she has done so much better. I can't even believe it myself. We fought so hard to get her eating, but she knew that we would always just put it in her tube, so she wasn't motivated.

There are still some food texture issues that we are working on. She doesn't much like vegetables (she might get that from me!), but we mix them with jar baby food, and she eats them. Please be praying that she starts to accept different food. For example, she won't eat food that isn't put in the blender. She can't eat just mashed food. But she now drinks her 7 ounces of milk at one time! She won't drink out of a bottle, but she drinks it from a little cup, or from a spoon.

Please pray for weight gain!
Marcy's occupational therapist wanted to weigh her, so she picked up the nurse from the local health centre, and we weighed her in a tree. Yes, in a tree. Not sure how accurate the scale is, but hey! Fun experience. ;)

We have a lot of prayer needs right now. Please be praying for all of us. And thank you for all your prayer and support in the past.

Monday, October 6, 2014

Marcy's first birthday.

We were privileged to share in our little Marcela's first birthday!!!! She turned one on September 13th, and we had a cake to celebrate.

 She needed a little help to know what to do at first. 
 But she caught on quickly!
 "Are you sure I can touch it?"
 "Look, I get to touch it!"
 "If everything tasted like icing, I'd eat a whole lot more food in my mouth!"

Icing up to her eyebrows. I'd consider that a success!
Happy birthday Marcelita. I love you the very most. 

Friday, October 3, 2014

In with the new!

Last week we held interviews and together, the social worker and I chose 6 ladies who will be now caring for the girls. It was difficult having all three nannies (and my housekeeper, but thankfully she will come back in a couple of months) tell me in a short period of time that they would be leaving, but God has been faithful to provide others.

On Monday we held orientation, and I was exited to see how they all interacted, and seemed to be attentive to all we had to say.
 Kimberly, the social worker, explaining the paperwork for when a new child comes.
 I mostly sat. I actually don't remember standing. But the picture of me sitting was goofy, so this is what you get. :)
We played a communication game. One girl was blindfolded, and the other had to guide her with just her words to direct her to the right colour clothespin.
I explained later how important it is to really communicate with each other. This is a team job, and we need to communicate well to give our best care to the girls.

This week two new girls came each day for a day of practice, and today is the first day that the weekend team is now on their own! Of course I'm sticking close by, as there is a lot of new stuff, but trying to back off a little and let them learn as they go.

Please be praying for all of us, the girls, the new nannies, and myself, that we would all quickly and seamlessly adapt to working together. Thank you!

Funniest moment from practice days: I had showed them how to bath Marcy, and I was at the change table getting ready to put her onesie on. A previous nanny had already picked out clothes and left them on the table. The onesie was size newborn, so I held it up next to Marcy to see if it would still be long enough. I guess one of the ladies thought I didn't know what to do with it, as she jumped in and told me I had to undo the snaps as the bottom first. I wonder what she thought about her new boss who had worked as a pediatric nurse for two years, then a NICU nurse for five years, and now running a home for girls with special needs, and didn't even know how to put on a onesie!!!! I'd be scared if I were her. ;)
Welcome to the new staff of Treasures of God Children's Home!

Tuesday, September 23, 2014

New girls!

I've gotten so behind on posting, that I haven't even introduced you to our two new sisters!

At the end of August I received a call about two sisters who were in a desperate situation. The only information that I was given was that one couldn't walk, and one couldn't talk. And that they were 11 and 13. That was above the age limit we had set in our profile, but because we were told it was a desperate situation, we accepted the girls.

Yasmin is 11 years old, and walks with help, and her older sister Jackelyn is 14, and she walks independently. Both girls are in good health, and have been well cared for, but caring for them is getting to be too much for the family. Both girls use diapers, aren't able to feed, bathe or dress themselves, or talk.
 Both Jackie (above) and Yasmin (below) love to be outside on the trampoline!

Trying to get a picture with everyone looking is a bit difficult.
I wanted in on the picture too! Jackie hits (a lot) so that is why her arms are held tight when next to the baby. :)

Please pray for us all. The new girls have definitely brought with them a joy, but some elements of the job have been difficult for the nannies. Having no experience with children with special needs (it is so hidden here, there is not much exposure for anyone), they have struggled to adapt. Actually, all three of my nannies have quit since the arrival of the other two girls. Please be praying for discernment as I interview new candidates tomorrow, and wisdom as I begin to train the new nannies next week. Thank you! 

Tuesday, August 26, 2014

Physical therapy.

For the last few weeks, Marcy has been receiving regular physical therapy. We have a great physical therapist, that has many years of experience. Her full time job is to work at at EDECRI, a place for only children and adults with special needs. We are blessed to have her in our area. She even comes by the house!
Tiny baby on a big blue ball!
 Learning the crawling position.
Sitting all by herself!!!!! Today she sat like this for at least a minute without any help! I was so proud of her. Physical therapy helps! 

We are paying about $20. a week for this service. If anyone would like to help out with this cost, please click on the donate button at the top of this blog, and let me know via e-mail that you would like it to go to her therapy. Thanks!

Thursday, August 14, 2014

Hurry up and wait.

I thought I would describe to you one of our recent appointments in the City. Not all of them were this bad, but they were still bad in terms of having to waiting forever. Forever, I tell you. I will warn you, this is a long story and it will take you a little while to read it. But please trust me, not nearly as long as this whole insane process took!

I wanted to get Marcy's hearing checked. She has malformations in both ears, and though I know that she hears, I wanted to confirm what level, and if both ears could hear. I called the hospital for the blind and deaf that does these tests and asked for an appointment, but they said you have to just show up and get a number. This is common here. You get a number, then are served in order of your arrival.

We were told they give out numbers from 6-7:30 a.m. We arrived at 5:40 and were given number 22. So we sat down and waited. Then we were called by number to a desk. As I was walking to line up another gentleman handed me an extra number he had. Number 12! Yay! Skipped half the line!  What I didn't know was that this was only the first of many. When I got to the desk, I told her the age of the baby, and that we wanted a hearing screen. She gave us a piece of paper and told us to go pay. So we went to that line up to pay. The guard saw me with a baby and told me I could sit down and he would let me know when it was my turn. After I paid (a minimal fee), I had to wait in another line. This one went a little slower. She entered Marcy's information and told me to go to the next line. In that line, I was called to the front by the guy. I figured it was a baby perk (often at banks you get moved to the front of the line if you have a baby-especially if that baby is crying!). He asked if I had gotten it all sorted, and I said yes. Then another lady at least half a foot shorter than me, Guatemalan, and about 50 years old came and stood beside me. He looked at her and said, "oh, I thought you were her." Really?!? That was the first time I had been mistaken for another Guatemalan. So I was flattered. But a 50 year old? Really?!? Oh well, it got me to the front of that line. ;) And I actually still don't know what that guy did with my information.

Then we had to go see another lady. She took my card with Marcy's info and asked me to wait outside that room, and she would take me to the next place. So I stood outside, foolishly thinking she was coming right away to help me. Nope. The same guard from the bank line up finally came over and told me I could sit down, she would be a while. What a nice guy! So I went and sat down and waited. While I was sitting there, a kid came running around a corner and ran into a blind guy's walking stick, but thankfully not enough to knock it out of his hands. Then a second later the kids dad comes tearing around the corner and without hesitating hurdle jumps the stick! The blind guy didn't even hesitate in his step, and I know he had to have heard the guy jumping right in front of him. I was amazed. He must just be used to people not taking care around him.

Lady finally comes, and takes us and few others to another area waiting room. I foolishly thought (there were a lot of foolish thoughts that happened that day) we were waiting for the hearing test. A lady called me into her office. I thought she might be the dr. Nope. She asked what she was here for. I told her I wanted a hearing test. She said we would have to see the dr. There were only 4 other people in the waiting room, so I figured (you guessed it, foolishly) that it wouldn't be that long of a wait. I found out later that lady was the social worker. I don't know why she wanted to see us first.

So I waited. Then we were told to go around the corner into a different waiting room. This one was packed!!! At least 60-70 people. And I had no idea where I was in the line up. A lot of time went by. People were called, and left, and we were still there. Then,  there were about 12-15 of us that hadn't been called, and it seemed like no one else had been called for a while. Another dad finally asked the nurse at the desk, and we found out that the pediatric dr had been called to an emergency surgery as some kid had shoved something into his ear. So we waited. And watched this movie on youtube. One of my favourites from my childhood!
While we were waiting, I noticed a nurse walking with a blind guy and his guide dog. Dog was on the left, and nurse on his right, leading him down the hall. She needed something that was on the desk to the left of the guy. So nurse figures she'll just jump in front of him quickly while she grabs her stuff. Problem was, guy had her elbow, and dog was in the way. So she kneed the dog in the head, and pulled blind guy over with her. It was really awkward. So she realizes she needs to disengage from the guy for a minute. That worked much better. He went to sit down. I said good morning to him as I passed by going to the bathroom. Dog was sprawled out in front of him, almost completely blocking the hallway. I thought that was strange as from what I've seen, guide dogs sit under the chair of their owner. But I thought he was big, and didn't fit under there.

Later on, the nurse was going to take blind guy somewhere so the guy gave the command "follow" to his dog. Nurse stopped at the desk and I guess the dog didn't feel like it. So the dog headed for the chairs and started taking the guy on a tour of us sitting waiting. Again, nurse doesn't say, "oh, I've stopped". I really though this being a hospital specifically for blind and deaf people, that the staff would have a little more education, but... no. At this point, I've figured out this dog couldn't care less about his job. His commands were in English, so I know he was trained in North America, but the guy hadn't kept up with his training I guess. The dog would sit on his feet if he was talking to someone. He would try and visit with everyone and pull blind guy along with him. It was almost funny. Until I got close to him with Marcy. We were beside him at the desk, and the dog leaned forward as he wanted to sniff Marcy. I told the guy that I had a baby in my arms, and that is why the dog was headed for me. The guy started to respond, saying something about the dog and kids, but I couldn't hear because all of a sudden the dog barked at Marcy and lunged for her!!!! If that had been my dog, what a beating he would have gotten! I was so shocked and mad. I don't think the dog would have bitten her, but why else was he barking and lunging at her! We steered very clear of them after that!

Finally the dr. comes. We go in, he looks in her ears, tells me her ear canals are open, and says she has to be sedated to do the test. And we have to get labs before we come back. We were in there about 2 minutes.

We went back to the social worker, and she explained the surgery, and the cost. She told us Marcy had to not eat before she came in for the sedation. I asked how long (figuring it was 4-6 hours or somewhere in there), and she said she didn't know. So she called the nurse and the nurse didn't know. So the social worker told me to go to my pediatrician and she would weigh and measure her and then tell us how long she had to go without eating. Seriously. If you don't know, just tell me that! Not some weird story about her height and weight.

Then we could finally leave. It was now after 11:00. It was a really long day. And we didn't even accomplish anything, since I don't intend to sedate her for the test! And we hand't eaten breakfast because it was too early in the morning before we went, and I really didn't think we'd be there half the day! So we went for a nice big pizza for lunch!

Oh well. What can I say, it was a good cultural experience?!?

Tuesday, August 12, 2014

Cute Marcy update.

We got back a week and a half ago from a four day trip to the Capital City, for five medical appointments for Marcy. I was really excited to see how much she weighs, and was counting on 10 1/2 pounds. She weighed 11 pounds 14 ounces!!!!!! What a superstar! Normally we weigh her without clothes, and this time they weighed her with clothes, so technically she is less than that, but not by much! I am so thankful. I feel like she is at a place now that I don't have to worry about her weight gain every day.

Our meeting with the cardiologist was first on the list. As soon as I walked in the hospital, I had what I assume was a panic attack. I couldn't believe it! I was nauseated, increased heart rate, felt like I was breathing with a big heavy rock on my chest, and a general sense on uneasiness. I know that it was a rough time spending those 5 1/2 weeks with her, but I sure didn't expect that! We ended up spending so much time waiting for the appointment that I was fine by the time we went in.

Unfortunately, she has another hole in her heart. Apparently it has always been there. But they didn't tell me about it until now. Don't ask me how I feel about that. This means possibly another surgery. Again, don't ask me how I feel about that. So please be praying for this hole to close. We go back at the end of October to check on it.

Nutrition was so happy to see how well she has fattened up that they took a picture of her! A lot of people stopped us int he hallway of the heart hospital to see how well Marcela was doing. The cleaning staff, support staff, pharmacist, nurses and dr's. It was like we were rock stars! ;) And I was so proud to show off how well she has been doing. We visited the head of the ICU and he donated a bunch of formula for her. Her main doctor was so happy to see her! It was nice to see them on a happy note.

We went to get a hearing test for her. I thought. Ended up waiting 5 1/2 hours to see a dr who said get these labs done and come back. I know that she hears, but because of the shape of her ears, there is a possibility that she will have some hearing loss. But she needs to be sedated for the test and I am not ready to put her through that. In other words, I'm too scared to sedate her. So that was a waste of a morning. I'll probably write about that adventure in another blog. ;)

We saw the nephrologist and she said her kidneys look good for now. Yay! We go back in three months for another check up.

We saw a geneticist to confirm her syndrome. He hasn't got back to me yet, but it will be good to know for sure what she has.
 This didn't happen as much as I would have liked. It is hard to not be at home, and be off your schedule.
Cute as she is, she was supposed to be sleeping! 
 We were THRILLED to be home! It was a long four days, and she did really well. Until we were getting ready to head home. It was a bit of a rough ride, and we didn't get in until after 8:30 at night.
Just hanging out. Is this one of the most cutest faces you have ever seen? And I get to hug and smooch on her every day!!!!!

Please be praying for the hole in her heart to close, and pray for her feeding. She is still using the feeding tube for about 2/3 of her feeds, but we are seeing definite improvement, praise God! 

Thursday, July 17, 2014

Faces.

Tiny, beautiful face.
Three months later:
Fat, beautiful face.

Thank you Lord, for all the work you have done in Marcela's life.

Wednesday, July 16, 2014

Pictures of Marcy! And other news. Though I know you really just come for the pictures. ;)

Last week the social worker and I went on a trip to 5 different provinces to let the judges and other protection agencies about our home, and what type of girls we are receiving. It was a long couple of days, but a few of them told us they had never heard of our home, so I was glad that we had taken the information out there.

I will admit, I'm a little confused. I know there are girls out there hurting, and suffering. We have put out information to several courts, and I know that our governing agency has also put us on their website. So where are the girls?

A friend of mine who has a home for kids with special needs has given my name out to at least three different courts when they have called. Yet they aren't calling me. To me, it all boils down to one thing: God isn't ready for us to have another girl yet. I don't know why, but I just need to be obedient, and wait for His timing. Again. Seems to be a theme in my life. ;)

While we wait, we are putting our all into our little Marcela. Which isn't hard to do. She has won quite a few hearts around here.
This is my favourite, when she sucks in her lips like that.

She is doing SO much better at sitting up, and rolling over (not quite all the way yet, but close!), and she moves her legs like crazy! 

Fat ankles!!!!! 
When we left the hospital on June 28th, she weighed 8 pounds, 11ounces. On July 11, she weighed 9 pounds, 10 ounces!!!! I am thrilled. She has wavered between 7 1/2 pounds and 8 1/2 pounds since she came at the beginning of April. Now we are pushing 10 pounds! It is funny, as I am having a hard time holding her now. She is so big and heavy, I can't throw her around like I used to! ;) But I couldn't be more thrilled. 
Eating! 
After being in the hospital and not eating by mouth for so long, she has decided she does NOT like to take a bottle. Or too much food for that matter. But we fight on! I only wish she would open her mouth that big for food. I have to squeeze it in between her lips. Ask me how easy that is! She'll eat it once it gets in there, but she won't willingly let it in. And when we offer a bottle, she just rolls the nipple around on her tongue. Please be praying that she will learn to love to eat. She doesn't know what she is missing!
 These two nurses made our hospital stay bearable. Thanks Judit and Sheny!

I have a hard time not kissing those cheeks all day. Literally. When I am near her, her face is being kissed. I can't help myself.
She likes bath time again! 
We had to work at this one too. When she got back from the hospital she wouldn't tolerate them at all. Her breathing would get so bad, all we could do was wipe her down every day. It is nice to have her enjoying it again. 
Thanks for praying for me!! 

Tuesday, July 8, 2014

A quick trip.

I've been asked by many people if I have received any more girls, and why haven't I received any more girls. I wondered myself for a while, and I was surprised. Some friends of mine opened a home for children with special needs in August, and in the first 6 weeks they received 8 children.

As I think about it, I am glad we didn't receive children that quickly. I wanted to stay with Marcela in the hospital, and make sure she was okay. It would have been very difficult (though do-able) to accept new girls. I think God knew I needed to be there with her. I have received a few phone calls, but none of the children were girls with special needs.

When we first opened, I travelled around to 5 different children's judges offices to let them know about our home. Now I feel like it is time to let more people know about us.

Tomorrow the social worker and I will travel to four different provinces to present our home to the judges, so they know who we are and what we do.

Please be praying for our safety as we travel. Please pray for Marcy as she stays home with the nanny.

Please be praying for the next girls to come. I know they are out there, they just need to find us. I'm excited to see who God brings to us next. Will it be a baby? A cute little toddler? A big 9 year old? I don't know! But it will be exciting to welcome the next member of our family. :)

Monday, July 7, 2014

We're home!

I'm actually a little behind on posting that title! We were able to bust out of the hospital last Saturday (the 28th) and come home the same day.

Her tracheostomy was removed for the second time on June 24th and I'll admit, I was worried. The Friday before that her left lung had completely collapsed for no known reason. They had put a chest tube in, and though the majority of it resolved, there was still less air entry in her left lung. From the moment they took it out, she was like a different baby. Her breathing was easy, and she smiled her first smile since she was admitted to the hospital. We stayed until Saturday to finish up some antibiotics, and she did so well that whole week!

Once we got home, she had another fever, and some coughing which had me worried. Her lungs and trachea are not as strong as they should be, so any little cold can be really bad for her. It was a rough first night, but praise God, since then she has done fantastic! And she is sleeping a lot better than before she went in the hospital, for which I'm very thankful.
She feels so much better now, that we are seeing many more smiles and lots of laughs! I'm so thankful for that. I love to see her feeling good! 

I have just a few prayer requests. First of all, her weight. She lost over a pound after the surgery, and though she regained it, after 5 and a half weeks of being in the hospital, she weighed only 2 ounces more than when she went in. We should be doing another weigh in this week, so pray for a fat girl!

Secondly, her eating. She wasn't able to eat in the hospital because of the trach. She didn't eat well before we went in, and since we've been home, she has flat out refused. I'll keep trying, and will be consulting on how I can help her to eat, but please continue to pray for that issue for her. 

Also, please be praying for her breathing. We are still dealing with some breathing issues that are as a result of her syndrome, plus the hospitalization. 

Hope you are all doing well, and I'll be back to normal posting about my cutie now! Thanks for all your prayers.