Her tracheostomy was removed for the second time on June 24th and I'll admit, I was worried. The Friday before that her left lung had completely collapsed for no known reason. They had put a chest tube in, and though the majority of it resolved, there was still less air entry in her left lung. From the moment they took it out, she was like a different baby. Her breathing was easy, and she smiled her first smile since she was admitted to the hospital. We stayed until Saturday to finish up some antibiotics, and she did so well that whole week!
Once we got home, she had another fever, and some coughing which had me worried. Her lungs and trachea are not as strong as they should be, so any little cold can be really bad for her. It was a rough first night, but praise God, since then she has done fantastic! And she is sleeping a lot better than before she went in the hospital, for which I'm very thankful.
She feels so much better now, that we are seeing many more smiles and lots of laughs! I'm so thankful for that. I love to see her feeling good!
I have just a few prayer requests. First of all, her weight. She lost over a pound after the surgery, and though she regained it, after 5 and a half weeks of being in the hospital, she weighed only 2 ounces more than when she went in. We should be doing another weigh in this week, so pray for a fat girl!
Secondly, her eating. She wasn't able to eat in the hospital because of the trach. She didn't eat well before we went in, and since we've been home, she has flat out refused. I'll keep trying, and will be consulting on how I can help her to eat, but please continue to pray for that issue for her.
Also, please be praying for her breathing. We are still dealing with some breathing issues that are as a result of her syndrome, plus the hospitalization.
Hope you are all doing well, and I'll be back to normal posting about my cutie now! Thanks for all your prayers.
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